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Physical activity programs may include walking, water exercises, balance or flexibility exercises, and weight training. They can be done at home or with other people. The activities should produce a sensation of warmth, and make you breathe harder. You should still be able to hold a conversation while doing the activity, but not to sing.
Caregivers who are physically active on a regular basis are less likely to experience stress than those who are not.
Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 10 studies concerned the impact of physical activity on caregiver burden; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.
Caregivers who are physically active on a regular basis are less likely to experience depressive symptoms than those who are not.
Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 9 studies concerned the impact of physical activity on depressive symptoms; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.
Caregivers who are physically active on a regular basis are more likely to experience well-being than those who are not.
Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 9 studies concerned the impact of physical activity on depressive symptoms; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.
Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 9 studies concerned the impact of physical activity on depressive symptoms; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.
For every 100 individuals who are physically active, about 15 experience an injury due to physical activity.
Design: Aerobics Center Longitudinal Study (ACLS), a prospective study of the health effects of physical activity and fitness at the Cooper Clinic; Participants: 5,028 men and 1,283 women aged 20–85 who were enrolled in the study between 1970 and 1982; Intervention: Physical activity (run/walk/jog or strenuous sports program); Follow-up: 12 months.
In general, to experience positive impacts from physical activity, people must be physically active at least 3 weeks, either for 20 minutes 3 times a week, or for 2 hours once a week. Whatever the duration and frequency of the exercise, it takes time.
Psychoeducation consists of programs to teach caregivers the skills required in their caregiving role. These programs provide information about the health conditions of the person in their care, and about the resources and services available to them. They also cover various topics, for example behaviour or mood management skills, problem-solving, and environmental modification strategies. Psychoeducation can be offered individually over the phone or on the Internet, or in a group.
"For every 100 older people who receive psychoeducation, 55 experience reduced stress due to psychoeducation.
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Stress is reduced for... | ||
---|---|---|
97% of caregivers |
42% of caregivers |
55% of caregivers |
With | Without | Impact |
Design: Meta-analysis of 13 RCTs concerning psychoeducation; Participants: 732 seniors with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Psychoeducation; Follow-up: Immediate post-treatment to 12 months after treatment.
For every 100 caregivers who receive psychoeducation, 5 experience reduced depressive symptoms due to psychoeducation.
Reduced depressive symptoms are experienced by... | ||
---|---|---|
46% of caregivers |
41% of caregivers |
5% of caregivers |
With | Without | Impact |
Design: Meta-analysis of 10 RCTs concerning psychoeducation; Participants: 607 seniors with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Psychoeducation; Follow-up: Immediate post-treatment to 12 months after treatment.
The current available research shows no effect of psychoeducation on caregiver well-being.
Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.
Psychoeducation takes time. So far, the programs that have demonstrated positive impacts required 1-2 weekly sessions and lasted about 8 weeks. Each session took about one hour.
Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.
Group-based psychoeducation may require caregivers to travel to a location far from their home.
Support groups are a safe space to discuss issues related to caregiving, celebrate successes, and share strategies or ideas to help with the caregiver role. There are various formats of support groups, including face-to-face meetings, video or teleconferences, and online communities. Support groups are often led by a person who shares, or has shared, the group's common experience, but they may also be led by a professional, such as a nurse, social worker, or psychologist.
Caregivers who participate to a support group are less likely to experience stress than those who are not.
Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.
The current available research shows no effect of participation in a support group on caregiver's depressive symptoms.
Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.
For every 100 older people who participate in support groups, 6 experience improved well-being due to these groups.
Well-being is increased for... | ||
---|---|---|
6% of caregivers |
0% of caregivers |
6% of caregivers |
With | Without | Impact |
Design: Randomized controlled trial; Participants: Sample size from 37 caregivers of seniors with dementia; Intervention: Support groups; Follow-up: 3 months.
Some caregivers are uncomfortable talking in large groups of people.
Design: Retrospective cohort study; Participants: 27 caregivers of seniors living with dementia who attended a support group, and 52 who did not attend; Intervention: Support group attendance; Follow-up: Direct measure.
Some caregivers face challenges to attend support group meetings, such as:
Design: Retrospective cohort study; Participants: 27 caregivers of seniors living with dementia who attended a support group, and 52 who did not attend; Intervention: Support group attendance; Follow-up: Direct measure.
Respite care consists of a wide range of services to relieve caregivers of some of their duties. It may be offered in the home by a professional or a volunteer who takes care of the care recipient for a while. It may also be offered in an institution that welcomes the care recipient and offers activities to entertain them. It can last anywhere from a few hours to several days.
The current available research shows that respite care does not reduce caregiver stress.
Design: Meta-analysis of 9 studies, including 5 randomized control trials and 4 quasi-experimental designs; 8 studies concerned respite care, including 4 randomized control trials and 4 quasi-experimental designs; Participants: Depending on the study, 21-989 caregivers/study; care recipients comprised patients with dementia or frailty; Intervention: Mix of daycare, in-home respite, and respite packages ranging from 10 days over a 2 week-period to 12 months, at a frequency of 1 to 5 times a week; Follow-up: Immediate post-treatment.
For every 100 caregivers who use respite care, 13 avoid depressive symptoms because of such care.
Depressive symptoms are avoided by... | ||
---|---|---|
48% of caregivers |
35% of caregivers |
13% of caregivers |
With | Without | Impact |
Design: Meta-analysis of 9 studies, including 5 randomized control trials and 4 quasi-experimental designs; 3 studies concerned respite care including 1 randomized control trial and 3 quasi-experimental designs; Participants: Depending on the study, 21-989 caregivers/study; care recipients comprised patients with dementia or frailty; Intervention: Mix of daycare, in-home respite, and respite packages ranging from 10 days over a 2-week period to 12 months, at a frequency of 1 to 5 times a week; Follow-up: Immediate post-treatment.
Some caregivers find it difficult to give up their caring role.They may feel a sense of failure or guilt when they acknowledge a need for support, especially if they have negative perceptions of respite services. These negative attitudes may originate from their perceptions that the care staff may lack respect for their loved ones.
Design: Qualitative synthesis of 70 primary studies; Participants: Caregivers of people aged 65 or more; Intervention: Respite interventions designed to provide the caregiver with a break from caring.
Some care recipients feel reluctant to use respite care. They can refuse to cooperate, causing more stress for the caregiver. This reluctance may stem from their previous personality or social preferences. Even with in-home respite care, some recipients may feel uncomfortable with strangers.
Design: Qualitative synthesis of 70 primary studies; Participants: Caregivers of people aged 65 or more; Intervention: Respite interventions designed to provide the caregiver with a break from caring.
Respite care may cause stress and confusion in the care recipient. It may also lead to a loss of mobility when exercise is not maintained during respite, or a loss of continence due to more limited personal care. These impacts may in turn create more stress for the caregiver.
Design: Qualitative synthesis of 70 primary studies; Participants: Caregivers of people aged 65 or more; Intervention: Respite interventions designed to provide the caregiver with a break from caring.
Respite services are not available everywhere. Most services also have costs (about $ 25 / hr).
Psychotherapy aims to improve an individual's well-being and mental health by having them talk with a psychiatrist, psychologist, or other mental health provider. During psychotherapy, you learn about your condition and your moods, feelings, thoughts, and behaviours. There are several different psychotherapy techniques. Psychotherapy may be delivered in person (one-on-one or with couples, or in groups), over the phone, via telephone counseling, or via the Internet.
Caregivers who receive psychotherapy are less likely to experience stress than those who are not.
Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 13 studies concerned psychotherapy, including 8 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.
Caregivers who receive psychotherapy are less likely to experience depressive symptoms than those who are not.
Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 13 studies concerned psychotherapy, including 8 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.
For every 100 older people who receive psychotherapy, 4 experience improved well-being due to psychotherapy.
Well-being is increased for... | ||
---|---|---|
8% of caregivers |
4% of caregivers |
4% of caregivers |
With | Without | Impact |
Design: Meta-analysis of 2 studies where psychotherapy was compared to an untreated control condition; Participants: 56 caregivers of seniors with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Psychotherapy; Follow-up: 3 to 12 months.
For every 100 persons who start psychotherapy, 20 quit before the end due to cost, lack of progress, dissatisfaction with therapy, anxiety during therapy, or because they moved to a different location.
Design: Systematic review of 669 studies; Participants: 83,834 adults who engaged in psychological or psychosocial intervention; Intervention: Psychological or psychosocial intervention.
For every 100 individuals who receive psychotherapy, 3 to 16 experience adverse effects, such as negative emotions, stigmatization, negative effects on their relationships, abuse by the therapist.
Design: Cross-sectional online survey; Participants: 195 adults who consulted for depressive, anxiety, personality, food, or other disorders, or schizophrenia; Intervention: Psychotherapy.
For every 100 individuals who receive psychotherapy for 10-20 weeks, 27 relapse within 1 to 2 years of the end of therapy.
Design: Systematic review of 10 randomized controlled trials; Participants: 1,233 adults (19-65 years old) with major depression; Intervention: Psychotherapy, compared to pharmacotherapy. Length of intervention: 10-20 weeks for pharmacotherapy or 8-20 weeks for psychotherapy; Follow-up: 1-2 years.
Consulting a psychotherapist in the public sector requires a reference from your family doctor. There are also wait lists to start therapy. Psychotherapy is also offered in the private sector, at a cost of about $100 per session.
Consists of keeping an eye on the your stress levels without undertaking treatment nor changing your lifestyle
Among the caregivers who make changes to reduce their stress, a certain proportion do not experience any improvement. They may be disappointed that the steps they took did not allow them to reach their goals. Watchful waiting allows them to avoid such disappointment.
All the available options to reduce caregiver stress cause some inconveniences. These inconveniences are reviewed in the previous pages of this document. People who do not undertake any new treatment or make changes to their lifestyle will not experience any of these inconveniences.
Caregivers of seniors experiencing a loss of autonomy may wish to take the time to find solutions by themselves, and to try to develop strategies that best suit their needs, without pressure.
Caregivers have 9% more chance of developing health problems compared to people who are not caregivers. Watchful waiting increases one's risk of experiencing health problems.
Design: Meta-analysis of 23 samples reported in 45 quasi-experimental studies; Participants: Sample size of 3,029 caregivers of patients with dementia, and non caregivers.
Caregiving is associated with increased mortality. Watchful waiting thus increases one's risk of dying.
Design: Longitudinal study; Participants :3,647 caregivers; Intervention: no intervention; Follow-up: every 6 months.
Any estimate of effect is very uncertain.
Downgraded because of risk of bias (all studies had high or moderate risk of bias), imprecision, and heterogeneity in the estimate of the effect.