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Stress in Caregivers

Options to Limit Stress in Caregivers of Older Adults

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  • Physical Activity

    Physical activity programs may include walking, water exercises, balance or flexibility exercises, and weight training. They can be done at home or with other people. The activities should produce a sensation of warmth, and make you breathe harder. You should still be able to hold a conversation while doing the activity, but not to sing.

    Benefits of Physical Activity
    Stress

    Caregivers who are physically active on a regular basis are less likely to experience stress than those who are not.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (all studies had high or moderate risk of bias), imprecision, and heterogeneity in the estimate of the effect.

      Studies and references

      Lambert et al. [2016]. Annals of Behavioral Medicine 50(6): 907-919.

      Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 10 studies concerned the impact of physical activity on caregiver burden; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.

    Depressive symptoms

    Caregivers who are physically active on a regular basis are less likely to experience depressive symptoms than those who are not.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (all studies showed high or moderate risk of bias), heterogeneity, and imprecision 

      Studies and references

      Lambert et al. [2016]. Annals of Behavioral Medicine 50(6): 907-919.

      Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 9 studies concerned the impact of physical activity on depressive symptoms; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.

    Well-being

    Caregivers who are physically active on a regular basis are more likely to experience well-being than those who are not.

    • Learn more about the studies
      Studies description
      Confidence in these results: Low

      Further research is very likely to have an important impact on our confidence in the estimate of effect and is likely to change the estimate.

      Downgraded because of moderate risk of bias and imprecision 

      Studies and references

      Lambert et al. [2016]. Annals of Behavioral Medicine 50(6): 907-919.

      Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 9 studies concerned the impact of physical activity on depressive symptoms; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.

    Harms of Physical Activity
    Sticking to the exercise program
    • For every 100 caregivers who start a regular exercise program, 0 to 30 are off it before the end, depending on the study. More will stick to the program in home-based programs compared to group-based programs.
    • Caregivers generally stop participating in exercise programs because they lack time.
    • Learn more about the studies
      Studies description
      Confidence in these results: Not evaluated

      Not evaluated due to a lack of an estimate of effect.

      Studies and references

      Lambert et al. [2016]. Annals of Behavioral Medicine 50(6): 907-919.

      Design: Systematic review of 14 studies, including 10 randomized control trials and 4 quasi-experimental designs; 9 studies concerned the impact of physical activity on depressive symptoms; Participants: Depending on the study, 12-137 caregivers/study; care recipients comprised patients with dementia, cancer, psychosis, stroke, or any disability or disease who were involved in studies concerning physical activity; Intervention: A mix of physical activities including walking, yoga, meditation, aerobic exercise, tai chi, strength training, stretching, and/or lifestyle physical activities such as gardening, housework, stair climbing, and dancing. Activity duration ranged from 6 weeks to 12 months, and included those attending a weekly class as well as those who participated in daily exercise; Follow-up: 3 to 12 months.

    Injury

    For every 100 individuals who are physically active, about 15 experience an injury due to physical activity.

    • Learn more about the studies
      Studies description
      Confidence in these results: Not evaluated

      Not evaluated due to a lack of an estimate of effect.

      Studies and references

      Hootman et al. [2002]. Med. Sci. Sports Exerc., Vol. 34, No. 5, pp. 838–844, 2002.

      Design: Aerobics Center Longitudinal Study (ACLS), a prospective study of the health effects of physical activity and fitness at the Cooper Clinic; Participants: 5,028 men and 1,283 women aged 20–85 who were enrolled in the study between 1970 and 1982; Intervention: Physical activity (run/walk/jog or strenuous sports program); Follow-up: 12 months.

    Practical issue : Time required

    In general, to experience positive impacts from physical activity, people must be physically active at least 3 weeks, either for 20 minutes 3 times a week, or for 2 hours once a week. Whatever the duration and frequency of the exercise, it takes time.

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  • Psychoeducation

    Psychoeducation consists of programs to teach caregivers the skills required in their caregiving role. These programs provide information about the health conditions of the person in their care, and about the resources and services available to them. They also cover various topics, for example behaviour or mood management skills, problem-solving, and environmental modification strategies. Psychoeducation can be offered individually over the phone or on the Internet, or in a group

    Benefits of Psychoeducation
    Stress

    "For every 100 older people who receive psychoeducation, 55 experience reduced stress due to psychoeducation. 
    "

    • Learn more about the studies
      Studies description
      Stress is reduced for...

      97% of caregivers

      42% of caregivers

      55% of caregivers

      With Without Impact
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about randomization, allocation concealment, blinding of participants and assessors or attrition bias) and imprecision 

      Studies and references

      New meta-analysis by the Decision Box team based on the results reported in Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design:  Meta-analysis of 13 RCTs concerning psychoeducation; Participants: 732 seniors with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Psychoeducation; Follow-up: Immediate post-treatment to 12 months after treatment.

    Depressive symptoms

    For every 100 caregivers who receive psychoeducation, 5 experience reduced depressive symptoms due to psychoeducation. 

    • Learn more about the studies
      Studies description
      Reduced depressive symptoms are experienced by...

      46% of caregivers

      41% of caregivers

      5% of caregivers

      With Without Impact
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about randomization, allocation concealment, blinding of participants and assessors or attrition bias) and imprecision 

      Studies and references

      New meta-analysis by the Decision Box team based on the results reported in Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design:  Meta-analysis of 10 RCTs concerning psychoeducation; Participants: 607 seniors with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Psychoeducation; Follow-up: Immediate post-treatment to 12 months after treatment.

    Well-being

    The current available research shows no effect of psychoeducation on caregiver well-being.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (lack of information about randomization and allocation concealment, blinding of participants and outcomes assessors or incomplete outcome data) and imprecision 

      Studies and references

      Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.

    Harms of Psychoeducation
    Practical issue : Time

    Psychoeducation takes time. So far, the programs that have demonstrated positive impacts required 1-2 weekly sessions and lasted about 8 weeks. Each session took about one hour.

    • Learn more about the studies
      Studies description
      Confidence in these results: Not evaluated

      Not evaluated due to a lack of an estimate of effect.

      Studies and references

      Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.

    Practical issue : May require travel

    Group-based psychoeducation may require caregivers to travel to a location far from their home.

    Close this option
  • Support groups

    Support groups are a safe space to discuss issues related to caregiving, celebrate successes, and share strategies or ideas to help with the caregiver role. There are various formats of support groups, including face-to-face meetings, video or teleconferences, and online communities. Support groups are often led by a person who shares, or has shared, the group's common experience, but they may also be led by a professional, such as a nurse, social worker, or psychologist.

    Benefits of Support groups
    Stress

    Caregivers who participate to a support group are less likely to experience stress than those who are not.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about randomization, allocation concealment, blinding of paricipants and assesors or attrition bias) and imprecision.

      Studies and references

      Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.

    Depressive symptoms

    The current available research shows no effect of participation in a support group on caregiver's depressive symptoms.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about randomization, allocation concealment, blinding of paricipants and assesors or attrition bias), imprecision and heterogeneity 

      Studies and references

      Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 10 studies concerned psychoeducation, including 3 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.

    Well-being

    For every 100 older people who participate in support groups, 6 experience improved well-being due to these groups.

    • Learn more about the studies
      Studies description
      Well-being is increased for...

      6% of caregivers

      0% of caregivers

      6% of caregivers

      With Without Impact
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about randomization, allocation concealment, blinding of paricipants and assesors and attrition bias) and imprecision 

      Studies and references

      New meta-analysis by the Decision Box team based on the systematic review results reported in Sorensen et al. [2002]. Gerontologist 42(3): 356-372. After careful examination of the review results, we could use only one of the studies cited in the review to estimate absolute risks in each experimental group, as the other included studies did not present any variability results. The results were thus extracted from Quayhagen et al. [2000]. International Psychogeriatrics, 12, 249–265. 

      Design: Randomized controlled trial; Participants: Sample size from 37 caregivers of seniors with dementia; Intervention: Support groups; Follow-up: 3 months.

    Harms of Support groups
    Discomfort in groups

    Some caregivers are uncomfortable talking in large groups of people.

    • Learn more about the studies
      Studies description
      Confidence in these results: Low

      Further research is very likely to have an important impact on our confidence in the estimate of effect and is likely to change the estimate.

      Downgraded because of risk of bias (self-reported assessment of exposure and outcome, lack of information on the outcome of interest at baseline)

      Studies and references

      Gage and Kinney. [1995]. Clinical Gerontologist 16: 21-34.

      Design: Retrospective cohort study; Participants: 27 caregivers of seniors living with dementia who attended a support group, and 52 who did not attend; Intervention: Support group attendance; Follow-up: Direct measure.

    Practical issue : Challenges in attending meetings

    Some caregivers face challenges to attend support group meetings, such as:

    • not being able to leave the person in their care
    • the meeting taking place too far away from their home
    • the meeting being held at inconvenient meeting times
    • not having any transportation
    • being too busy
    • Learn more about the studies
      Studies description
      Confidence in these results: Low

      Further research is very likely to have an important impact on our confidence in the estimate of effect and is likely to change the estimate.

      Downgraded because of risk of bias (self-reported assessment of exposure and outcome, lack of information on the outcome of interest at baseline)

      Studies and references

      Gage and Kinney. [1995]. Clinical Gerontologist 16: 21-34.

      Design: Retrospective cohort study; Participants: 27 caregivers of seniors living with dementia who attended a support group, and 52 who did not attend; Intervention: Support group attendance; Follow-up: Direct measure.

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  • Respite care

    Respite care consists of a wide range of services to relieve caregivers of some of their duties. It may be offered in the home by a professional or a volunteer who takes care of the care recipient for a while. It may also be offered in an institution that welcomes the care recipient and offers activities to entertain them. It can last anywhere from a few hours to several days.

    Benefits of Respite care
    Stress

    The current available research shows that respite care does not reduce caregiver stress.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about allocation concealment and no information about randomization, blinding of participants and assessors or attrition bias), imprecision and heterogeneity

      Studies and references

      Mason et al. [2007]. J Am Geriatr Soc 55(2): 290-299.

      Design: Meta-analysis of 9 studies, including 5 randomized control trials and 4 quasi-experimental designs; 8 studies concerned respite care, including 4 randomized control trials and 4 quasi-experimental designs; Participants: Depending on the study, 21-989 caregivers/study; care recipients comprised patients with dementia or frailty; Intervention: Mix of daycare, in-home respite, and respite packages ranging from 10 days over a 2 week-period to 12 months, at a frequency of 1 to 5 times a week; Follow-up: Immediate post-treatment.

    Depressive symptoms

    For every 100 caregivers who use respite care, 13 avoid depressive symptoms because of such care.

    • Learn more about the studies
      Studies description
      Depressive symptoms are avoided by...

      48% of caregivers

      35% of caregivers

      13% of caregivers

      With Without Impact
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (no information about randomization, allocation concealment, blinding of participants or outcome data) and imprecision

      Studies and references

      Transformation to absolute risks by the Decision Box team of data reported in Mason et al. [2007]. J Am Geriatr Soc 55(2): 290-299.

      Design: Meta-analysis of 9 studies, including 5 randomized control trials and 4 quasi-experimental designs; 3 studies concerned respite care including 1 randomized control trial and 3 quasi-experimental designs; Participants: Depending on the study, 21-989 caregivers/study; care recipients comprised patients with dementia or frailty; Intervention: Mix of daycare, in-home respite, and respite packages ranging from 10 days over a 2-week period to 12 months, at a frequency of 1 to 5 times a week; Follow-up: Immediate post-treatment.

    Harms of Respite care
    Feelings of failure and guilt

    Some caregivers find it difficult to give up their caring role.They may feel a sense of failure or guilt when they acknowledge a need for support, especially if they have negative perceptions of respite services. These negative attitudes may originate from their perceptions that the care staff may lack respect for their loved ones.

    • Learn more about the studies
      Studies description
      Confidence in these results: Not evaluated

      Not evaluated due to a lack of an estimate of effect.

      Studies and references

      Shaw et al. [2009]. Health technol Assess; 13(20):1-224.

      Design: Qualitative synthesis of 70 primary studies; Participants: Caregivers of people aged 65 or more; Intervention: Respite interventions designed to provide the caregiver with a break from caring.

    Reluctance of care recipients

    Some care recipients feel reluctant to use respite care. They can refuse to cooperate, causing more stress for the caregiver. This reluctance may stem from their previous personality or social preferences. Even with in-home respite care, some recipients may feel uncomfortable with strangers.

    • Learn more about the studies
      Studies description
      Confidence in these results: Not evaluated

      Not evaluated due to a lack of an estimate of effect.

      Studies and references

      Shaw et al. [2009]. Health technol Assess; 13(20):1-224.

      Design: Qualitative synthesis of 70 primary studies; Participants: Caregivers of people aged 65 or more; Intervention: Respite interventions designed to provide the caregiver with a break from caring.

    Negative impacts on the care recipient

    Respite care may cause stress and confusion in the care recipient. It may also lead to a loss of mobility when exercise is not maintained during respite, or a loss of continence due to more limited personal care. These impacts may in turn create more stress for the caregiver.

    • Learn more about the studies
      Studies description
      Confidence in these results: Not evaluated
      Studies and references

      Shaw et al. [2009]. Health technol Assess; 13(20):1-224.

      Design: Qualitative synthesis of 70 primary studies; Participants: Caregivers of people aged 65 or more; Intervention: Respite interventions designed to provide the caregiver with a break from caring.

    Practical Issues: Access and costs

    Respite services are not available everywhere. Most services also have costs (about $ 25 / hr).

    Close this option
  • Psychotherapy

    Psychotherapy aims to improve an individual's well-being and mental health by having them talk with a psychiatrist, psychologist, or other mental health provider. During psychotherapy, you learn about your condition and your moods, feelings, thoughts, and behaviours. There are several different psychotherapy techniques. Psychotherapy may be delivered in person (one-on-one or with couples, or in groups), over the phone, via telephone counseling, or via the Internet.

    Benefits of Psychotherapy
    Stress

    Caregivers who receive psychotherapy  are less likely to experience stress than those who are not.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about allocation concealment and no information about randomization, blinding of participants and assessors or attrition bias) and imprecision

      Studies and references

      Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 13 studies concerned psychotherapy, including 8 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.

    Depressive symptoms

    Caregivers who receive psychotherapy  are less likely to experience depressive symptoms than those who are not.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about allocation concealment and no information about randomization, blinding of participants and assessors or attrition bias), imprecision and heterogeneity 

      Studies and references

      Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design: Meta-analysis of 78 studies, including randomized control trials and other study designs, where an intervention condition was compared with an untreated control condition; 13 studies concerned psychotherapy, including 8 randomized control trials; Participants: Depending on the study, from 4 to 2,268 caregivers/study (median of 24); care recipients comprised patients with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Multiple interventions, including psychoeducation, support groups, and psychotherapy; Follow-up: Immediate post-treatment.

    Well-being

    For every 100 older people who receive psychotherapy, 4 experience improved well-being due to psychotherapy.

    • Learn more about the studies
      Studies description
      Well-being is increased for...

      8% of caregivers

      4% of caregivers

      4% of caregivers

      With Without Impact
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete information about randomization, allocation concealment, blinding of participants and assessor or attrition bias) and imprecision 

      Studies and references

      New meta-analysis by the Decision Box team based on the results reported in Sorensen et al. [2002]. Gerontologist 42(3): 356-372.

      Design:  Meta-analysis of 2 studies where psychotherapy was compared to an untreated control condition; Participants: 56 caregivers of seniors with physical disabilities or mental illness, stroke patients, cancer patients, and dementia patients; Intervention: Psychotherapy; Follow-up: 3 to 12 months.

    Harms of Psychotherapy
    Therapy discontinuation

    For every 100 persons who start psychotherapy, 20 quit before the end due to cost, lack of progress, dissatisfaction with therapy, anxiety during therapy, or because they moved to a different location.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of potential risk of bias (absence of information about quality assessment) and heterogeneity 

      Studies and references

      Swift & Greenberg. [2012]. J Consult Clin Psychol, 80(4), 547-559.

      Design: Systematic review of 669 studies; Participants: 83,834 adults who engaged in psychological or psychosocial intervention; Intervention: Psychological or psychosocial intervention.

    Adverse effect

    For every 100 individuals who receive psychotherapy, 3 to 16 experience adverse effects, such as negative emotions, stigmatization, negative effects on their relationships, abuse by the therapist.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because this is an observational study with several potential risks of bias, and because of indirectness since the participants were not caregivers.

      Studies and references

      Ladwig et al. [2014]. Verhaltenstherapie, 24(4), 252-263.

      Design: Cross-sectional online survey; Participants: 195 adults who consulted for depressive, anxiety, personality, food, or other disorders, or schizophrenia; Intervention: Psychotherapy.

    Relapse

    For every 100 individuals who receive psychotherapy for 10-20 weeks, 27 relapse within 1 to 2 years of the end of therapy.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (incomplete or no description of the randomization and the allocation concealment method as well as blinding of participants and outcomes assessors) and indirectness (patients younger than 65 years)

      Studies and references

      De Maat et al. [2006]. Psychother. Res., 16(5), 566-578.

      Design: Systematic review of 10 randomized controlled trials; Participants: 1,233 adults (19-65 years old) with major depression; Intervention: Psychotherapy, compared to pharmacotherapy. Length of intervention: 10-20 weeks for pharmacotherapy or 8-20 weeks for psychotherapy; Follow-up: 1-2 years.

    Practical issue : Availability of psychotherapist

    Consulting a psychotherapist in the public sector requires a reference from your family doctor. There are also wait lists to start therapy. Psychotherapy is also offered in the private sector, at a cost of about $100 per session.

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  • Watchful waiting

    Consists of keeping an eye on the your stress levels without undertaking treatment nor changing your lifestyle

    Benefits of watchful waiting
    Avoid making a change if the impacts are uncertain

    Among the caregivers who make changes to reduce their stress, a certain proportion do not experience any improvement. They may be disappointed that the steps they took did not allow them to reach their goals. Watchful waiting allows them to avoid such disappointment.

    Downsides of interventions

    All the available options to reduce caregiver stress cause some inconveniences. These inconveniences are reviewed in the previous pages of this document. People who do not undertake any new treatment or make changes to their lifestyle will not experience any of these inconveniences.

    Take the time to find solutions yourself

    Caregivers of seniors experiencing a loss of autonomy may wish to take the time to find solutions by themselves, and to try to develop strategies that best suit their needs, without pressure.

    Harms of watchful waiting
    Health problems

    Caregivers have 9% more chance of developing health problems compared to people who are not caregivers. Watchful waiting increases one's risk of experiencing health problems.

    • Learn more about the studies
      Studies description
      Confidence in these results: Very low

      Any estimate of effect is very uncertain.

      Downgraded because of risk of bias (validity of the health measures used across studies, selection biases, and problems of confounding and reverse causality) and heterogeneity.

      Studies and references

      Vitaliano et al. [2003]. Psychol Bull 129(6): 946-972.

      Design: Meta-analysis of 23 samples reported in 45 quasi-experimental studies; Participants: Sample size of 3,029 caregivers of patients with dementia, and non caregivers.

    Mortality

    Caregiving is associated with increased mortality. Watchful waiting thus increases one's risk of dying.

    • Learn more about the studies
      Studies description
      Confidence in these results: Not evaluated
      Studies and references

      Perkins et al. [2013]. J Gerontol B Psychol Sci Soc Sci 68(4): 504-512.

      Design: Longitudinal study; Participants :3,647 caregivers; Intervention: no intervention; Follow-up: every 6 months.

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Version 1.0

Publication date : November 2018 - Evidence update: : August 2017 - Next update : August 2019